Nutrition & diet are essential - Interview with Ginger Savely
Ginger R. Savely, RN, FNP-C is a primary care provider who specializes in treating Lyme disease symptoms.
She has bachelors degrees in both Psychology and Nursing and graduated summa cum laude in her nursing class at the University of Texas where she was named Outstanding Graduating Senior. She has masters degrees in both education and nursing, and recently earned a doctorate degree in research.
Ginger is a member of ILADS, a prestigious group of world experts on the treatment of Lyme and other tick-borne diseases. She was honored by her peers by being selected to receive the 2004 Texas Nurse Practitioner of the Year Award. Ginger's clinic is called TBD Medical Associates and she is located at Union Square Medical Associates, in San Francisco. She can be reached at Ginger Savely.com.
It's great to get Ginger's perspective on nutrition, and as we talked about what Lyme patients can do to include diet and nutrition in their protocol, she mentions Dr. Royal Lee, who first recognized that processed foods cause many health problems. She points out that MDs are not trained in nutrition, and that in general, most interested citizens know more than their doctors about food and its effect on their health. MDs are trained to fix the current problem, not to counsel patients about eating a healing diet.
Patients looking for guidance in diet and nutrition generally cannot get it from their LLMD. Although there are exceptions, and many doctors do go on to study diet and nutrition as part of a healing approach, in general, MDs are just not trained to think in that way.
So, what's a Lyme patient to do?
To help her patients educate themselves about healing from Lyme disease, Ginger recommends that they read a book called The Fourfold Path to Healing, by Thomas Cowan. She says it's a must-read for Lyme patients. The 100 Perspectives that is available on this website is also a "cross-training" approach that I've taken for recovering from Lyme. Getting better requires looking at the bigger picture of health, and not simply taking the antibiotics prescribed by a doctor, even an LLMD.
Attitude is another part of the big picture that Ginger spoke with me about. Lyme symptoms often manifest in our emotions and mental states, and it is well-known that holding onto anger can be very damaging to the immune system. She discusses how she has observed that patients who hang on to anger or have bitterness toward the world can throw a wrench into their own healing process.
Listen to my conversation with Ginger Savely.
How many vitamins are too many?
We all know that suffering with Lyme symptoms can really push you to the edge. So when an expert says, "do this thing, e.g., take a handful of vitamins, and you'll feel better," we will go to just about any length to do that thing.
If you take upwards of 30 different supplements per day (or if it just feels like you do), and you are a bit depressed by the amount of time, money and energy you spend on them, then Ginger Savely, FNP, is on your side. She is on the hunt for products that give us "the most bang for our buck." Instead of taking 30 pills, you can get the same amount of supplements in just a couple of products such as Green Vibrance, which includes many of the vitamins we want in our healing diets, and fish oil.
Ginger is a nurse practitioner with a doctorate degree in research, who owns the SF clinic where she primarily sees patients with Lyme and Morgellons disease, of whom a high percentage also have Lyme. But Ginger's work does not stop there. She is a lifelong learner (and a former Lyme patient herself), who is currently enrolled in advanced courses in clinical nutrition and diet.
She began treating Lyme patients over a decade ago, and over the years gathered her recommendations into a pamphlet that she provides new patients. One patient, after looking over the material, told Ginger that she "sat down and cried," after reading it. She simply felt overwhelmed by the amount of things to take. She felt she would never be able to take all the supplements she needed to take.
Her patient's response made an impression, and Ginger then began to listen to her own gut instinct, and change the way she views diet and food. She says that instead of putting the emphasis on vitamin supplements in isolation, she now sees diet and food choices as a central component in healing Lyme disease.
Ginger has long suspected that the isolated vitamins we consume may not be the most efficient way to supplement our diets. And she readily admits she has been guilty of it herself, advising her patients to include vitamins recommended by popular research studies. Yet in her gut, she's always been curious as to just how effective these vitamin pills are.
Asking her patients didn't clear up the matter much. They would often say they took a long list of supplements, not because the vitamins made a difference in the way they felt, but because they were afraid to stop, just in case they might feel worse.
But Ginger's instinct has pointed her in a different direction. In terms of eating well to support a healing diet, she might say it's back to the future.
What does she advise her Lyme patients to do now? Get your healing supplements directly from the food you eat. Eat the old-fashioned way, by which she means the way we ate 100 years ago. Don't shy away from a little bit of animal fat, she says. The chronic illnesses that are currently such a problem in the western world, such as heart disease and diabetes, have come about since we started cutting "healthy" fats from our diet and replacing them with refined carbohydrates and refined sugar.
Eat the way your grandparents (or your great-grandparents) did. Whole foods, meat with a little fat on it (preferably grass-fed and organic), organic veggies. Above all, no refined carbs or sugar, which have absolutely no place in a healing diet.
On the occasions when Ginger does indulge in sugar, she feels "foggy" the very next day. She is a self-described sugar-holic, so she understands how difficult it is for some people to give it up. Yet after a few initial suggestions, she says, patients who agree to drop sugar from their diets seem to need no reminding. The body knows it will heal faster without it. After a couple of weeks of going without, it simply doesn't appeal to them anymore.
If you do eat sugar, keep it to the whole foods variety which at least includes a little nutritional value. Blackstrap molasses, unrefined honey may be tolerated by some people. Agave sweetener is processed in the exact same way that refined sugar is, and we have been "sold a bill of goods on that," she says.
If you don't eat sugar, antibiotics will have a better chance of working, and you may heal more quickly. Ginger observes that her patients who indulge in refined sweets do seem to take a slower route back to living a vibrantly healthy, post-Lyme life.
Ginger is featured in our Expert Audio Series. You can hear her interview for free by signing up for our LDRD newsletter.
Lyme doctor punished for helping children
Bartlett sponsored a bill that was passed unanimously by Connecticut State Legislature in 2009 that protects doctors who treat chronic Lyme with antibiotics over extended periods. But although it may protect doctors in the future, it's not doing anything to protect Dr Jones right now.
"The law 'allow[s] a licensed physician to prescribe, administer or dispense long-term antibiotics for a therapeutic purpose to a patient clinically diagnosed with Lyme disease.'"
Jones has been ordered to hire a monitor to examine his patients charts every month, given four years of probation and smacked with a $10,000 fine. Jones expects the monitor may cost $2,000 - $10,000 per month. He says "it's hopeless," because he simply cannot afford it. But what really burns up his supporters is that the good doctor appears to be the mouse in a game of legal cat-and-mouse being played out at his expense.
In a New Haven Advocate article from July 13, Time Is Running Out For Controversial Chronic Lyme Disease Doctor Betsy Yalga writes,
"None of Jones’ patients has complained, he’s quick to point out, and none has been harmed by his treatment. He’s never been sued for medical malpractice. The charges against him have been levied by fathers involved in custodial battles over their children. In those cases Mom was in charge of treatment and Dad was in charge of payment and disputed the need for treatment. By complaining, Jones’ supporters say, Dad could get back at Mom and possibly skirt paying a costly medical bill. There were no allegations of harm done to the children."
Please listen to a brief interview with Dr Charles Ray Jones.
Samento & Banderol found significantly effective in Lyme treatment
Samento and Banderol are found to be important herbal allies, in this study conducted by our friends at the Lyme Disease Research Group of the University of New Haven. In our interview with Eva Sapi, PhD, director of the graduate program in Lyme disease research, she promised that she was quite determined to find an effective agent that would "kill the bug -- and soon." So, this study is proof that Dr Sapi is following through with her promise. It is a hopeful note in the battle against the nasty bacterial complex we know as Borrelia burgdorferi.
Personally, I am very excited about these findings. Samento and Banderol have been my medicine of choice for several years. These herbal extracts have certainly been effective, helping me pull myself out of a painful, groggy nightmare and get my life back on track. Those two herbal tinctures daily, plus a host of other supportive supplements, a regular exercise routine, and a sugar-free, whole-foods diet, have made all the difference. Samento and Banderol have truly been my allies in this cross-training approach to healing.
Please read the entire article reporting on the study, which you can find on the website of the Townsend Letter, the Examiner of Alternative Medicine. The article is titled: In Vitro Effectiveness of Samento and Banderol Herbal Extracts on the Different Morphological Forms of Borrelia Burgdorferi by Akshita Datar, Navroop Kaur, Seema Patel, David F. Luecke, and Eva Sapi, PhD -- Lyme Disease Research Group, University of New Haven
Members, to learn more about the work of the University of New Haven Lyme research program, please listen to our interview with Dr Eva Sapi. You will also find more information about Lee Cowden, MD, and his herbal protocol.
Jessica Wojenski, teen on a mission to educate people about Lyme
“There’s such a lack of awareness out there about this that unless you scare people into realizing, they’re never going to get it, even though I hate doing that,” Jessica told the reporter.
I know just how she feels, and you probably do as well, if you have suffered with debilitating Lyme symptoms. Jessica is dedicated to raising awareness of the complications the disease can cause. Evidently she did not show symptoms in the early stages, which is a problem that many of us deal with -- not even suspecting Lyme disease as a cause of our painful and disorienting symptoms until the disease has progressed beyond the early stages. Kudos to her, and we hope she continues to find support in her New Hampshire community, which is located in the hot zone for ticks and Lyme infections.
When you are first diagnosed, you can easily be overwhelmed by information about what to do. What will work, what won't? Who should you consult and who can you trust as a reliable resource?
I agree with Jessica, there is not enough awareness of the serious nature of Lyme disease out there. Like her, I contracted Lyme about 5 or 6 years ago, and my painful symptoms and treatment quickly made it impossible for me to live my life in a normal way. Since then, my mission has also been to help educate people about this disease through sharing my interviews with Lyme disease experts and people who are living normal, healthy lives again, post-Lyme.
My life is now back to normal, thankfully, and my hope is that yours will soon be too. This is a good place to start educating yourself and clear up any confusion. Our list of "10 things you need to know about Lyme," is available immediately, when you sign up for our free newsletter.
NIH develops more sensitive test for Lyme disease
New Test May Simply and Rapidly Detect Lyme Disease
Researchers from the National Institutes of Health have developed a more sensitive test for Lyme disease that may offer earlier detection and lower cost. The details are reported in the June 2010 issue of the journal Clinical and Vaccine Immunology.
Lyme disease is a bacterial infection transmitted to animals and humans by deer ticks. A skin lesion at the site of the bite is one of the first signs of infection followed by potential neurological, cardiac, and rheumatological complications upon entering the bloodstream. The Centers for Disease Control and Prevention currently recommends a two-step blood test for diagnosing the disease, however, several limitations include low sensitivity during the early stages of infection, significant time and expense, and an inability to distinguish between active and prior infection.
In prior studies the luciferase immunoprecipitation system (LIPS) test showed promise at detecting a variety of infectious agents including viral and fungal pathogens. Here, LIPS was evaluated for its ability to detect antibody responses to Borrelia burgdorferi proteins in blood samples taken from a patient group (some healthy and some with Lyme disease) as well as a control group. Results showed that diagnostic levels of 98% to 100% were achieved using LIPS in conjunction with the synthetic protein VOVO.
"These results suggest that screening by the LIPS test with VOVO and other B. burgdorferi antigens offers an efficient quantitative approach for evaluation of the antibody responses in patients with Lyme disease," say the researchers.
(P.D. Burbelo, A.T. Issa, K.H. Ching, J.I. Cohen, M.J. Iadarola, A. Marques. 2010. Rapid, simple, quantitative, and highly sensitive antibody detection for Lyme disease. Clinical and Vaccine Immunology, 17. 6: 904-909.)
Biotoxins test and chronic Lyme
People who cannot naturally eliminate biotoxins develop chronic illness. About 20% of patients with Lyme disease, due to their hepa-type, are susceptible to biotoxin illnesses. However, according to Dr Richie Shoemaker and other biotoxin experts, the toxins can be eliminated and good health can be restored.
From biotoxin.info: "Many physicians feel that diagnostic tests for Lyme are unreliable, due to differences between strains of the bacteria, and the potential for co-infections with Bartonella, Babesia and/or Ehrlichia. A team of researchers at Boston University Medical Center (Cartwright, Martin Donta) discovered and patented (US Patent No. 6,667,038) the Bbtox1 neurotoxin. They reported that the effects of Bbtox1 were consistent with that of botulinium and other cytoskeletal toxins. Even so, there are no chemical tests for the disease-causing toxin B. burgdorferi produces and releases into human body, even as antibiotics are killing the bacteria. Without such tests, the medical debate over whether or not Lyme can be quickly cured has surged in recent years, provoking frequent battles in which physicians have attacked each other's credibility and integrity (and in a few cases, even their medical licenses). All too often, suffering patients have been left in the middle, essentially ignored by doctors who contend that their long-term symptoms aren't the result of Chronic Lyme, but of 'Fibromyalgia,' 'Chronic Fatigue Syndrome', 'depression,' or 'irritable bowel syndrome.'"
Testing for nervous system dysfunction can be done online. The Visual Contrast Sensitivity (VCS) test is a pattern recognition test that Dr Shoemaker uses to help determine how the nervous system is functioning. According to Dr Joseph Burrascano, at least 70 - 90% of patients whose VCS test is abnormal feel better with treatment, while 30% of patients who test normal from the VCS test feel better with neurotoxin treatment.
When testing for Lyme infection, coinfections are often culprits that go undetected. Be sure to look for Bartonella or Babesia, which destroys red blood cells.
Dr Shoemaker and other Lyme experts agree that if you find elevated C4-A markers, and if symptoms are persistent beyond the initial antibiotic protocol that may indicate that a longer antibiotic treatment, possibly including intravenous antibiotic therapy, is needed. As he makes it clear in this video, you and your doctor will be the judge in whether or not you should use long-term antibiotics.
Interview with Lyme Dr David Jernigan
When I was diagnosed with late-stage Lyme in 2005 a dear friend sent me Dr Jernigan's book, Beating Lyme Disease. Since my diagnosis I had been in a state of shell-shock, weak and sick, and barely knowing anything about the disease or its cause beyond the very basics.
Beating Lyme Disease was the beginning of my turnaround. This comprehensive book helped me begin to understand what was happening, and how the body responds to Lyme bacteria. I particularly remember how helpful it was to learn about the lower core body temperatures that Lyme patients develop. While reading, I became steadfastly determined to beat Lyme, despite the grim prognosis of my infectious disease doctor. In fact I dropped that doctor like a hot potato and found a naturopath who also believed I would be healthy again one day.
Now the new, second edition of Dr Jernigan's enlightening and useful book is available, sporting the inspiring subtitle: Living the Good Life in Spite of Lyme.
Recently, I had an opportunity to talk with Dr Jernigan and learn about his unique approach to Lyme treatment. He has witnessed the positive turnaround of thousands of Lyme patients at the Hansa Center for Optimum Health, his clinic in Wichita, KS. One of the first things he clarified was that many people come to see him and his colleagues after already having seen an average of 20 - 30 other doctors or more, without finding relief.
Chances are you've experienced that fruitless search yourself. Dr Jernigan says he hears it from his patients every day. People who have been dismissed and their terrible pain reduced to imagination with, "it's all in your head," or "you need a psychiatrist," or even, as one of his patients was told by a previous doctor, "you need a new husband." I like to remember when my infectious disease doctor told me bluntly, "you are too late." (Wrong!)
Clearly, one big problem in Lyme diagnosis is that our medical industry depends on doctors who specialize. A cardiologist specializes in finding heart problems and fixing them. A dermatologist specializes in finding skin problems and fixing them, and so on. But we are not mechanistic parts and pieces, welded together like the engine of a Toyota. And Lyme is not a problem that can always be located in one particular spot. It affects all the systems of our body, including the brain and so also the mind.
If you have ever felt that a specialist has given you lousy and limited information about your illness and how to treat it, you know what it's like to be treated like a piece of machinery.
In contrast, the Hansa Center for Optimum Health has a whole person approach. Their motto is: "Healing From Within, Treating the Whole Person, Body, Mind & Spirit."
Soon I'll be reviewing the 2nd edition of Dr Jernigan's book, Beating Lyme Disease: Living the Good Life in Spite of Lyme.
Contact him through the Hansa Center's website. Listen to "The Bridge," the Hansa Center's "New Healing Radio Station," located on the website's home page.
LDRD members please login and listen to our interview with Dr Jernigan. Hear him describe his unique, whole person approach to beating Lyme, and living the good life in spite of it. Become a member
Tennis star beats Lyme disease
Why do athletes seem to have a superb ability to beat Lyme and other serious diseases? There are probably many reasons. We believe it has something to do with maintaining a positive mental focus on winning (putting mind over matter), and regular exercise, which warms up the body's core temperature. Although Sam was unable to exercise (or indeed, even take care of herself) while the disease was in an acute phase, she did return to training and competing as soon as she could muster the strength.
Athletes engage in a program of regular vigorous exercise which raises their body temperatures on a consistent basis, which induces sweat. The raised temperature heats up the body's environment, keeps the lymph flowing at a healthy rate, and kills off toxins and bacteria so they can be carried away in the sweat and washed off.
This is a recent story that probably didn't escape your attention if you are a tennis fan and you have Lyme.
Watch a brief interview with Sam.
Trust your doctor. Or not?
Many people, doctors included, believe that a bull's eye rash is the definitive Lyme symptom. In fact, up to two-thirds of people infected with Lyme never develop a rash. When I say doctors I mean doctors from all fields. That includes GPs, Infectious Disease specialists, Neurologists, Dermatologists, Hematologists, Cardiologists, you name it.
- It is a mistake to assume that your family doctor (or your dentist, for that matter) knows anything about Lyme disease or common Lyme co-infections, such as Babesia, Bartonella, or Ehrlichia. They will most likely tell you with some degree of confidence that Lyme is rare, hard to get, easy to cure, or that it simply doesn't exist where you live. This is old thinking, but you may be surprised how many people (doctors too) are not educated about Lyme, yet possess strong opinions about it.
Tick bites can occur without anyone noticing. They do not hurt. You may have never seen a tick on your skin, or you might have been told the ticks in your region don't carry Lyme. You might remember a tick bite, but you never developed the bull's eye rash, and wrote off the other symptoms as a bad flu, a touch of arthritis, or a passing case of tachycardia.
If you are symptomatic, and have been told that you don't have Lyme but you strongly suspect it, have your blood tested through the IGeneX laboratory. Obtain a second, third, or fourth opinion. Most people who are now successfully overcoming Lyme will tell you they saw 10, 20, 30 doctors or more before they found help.
In my own case, several Infectious Disease doctors I consulted with were quickly convincing themselves that I must have multiple sclerosis. Every cell in body and mind knew with absolute certainty that they were wrong. During that period, I had my blood tested at IGeneX, so I knew that they were wrong. These doctors saw the test results with their own eyes and did not trust them. However, I was in no shape to refute them. At the time I was extremely weak, unable to articulate my thoughts, speak clearly, and was essentially wasted from a horrible full-body rash (not the bull's eye, which actually might have been helpful in terms of their diagnoses).
Prior to my IGeneX test, the expensive dermatologist I consulted had prescribed Prednisone, and taking it (I later learned) was possibly the worst thing I could have done. The steroids explosively multiplied the spirochetes and drove them deeper into my body and brain. Finally I found a naturopath who believed my test results and had treated several patients who had Lyme and co-infections. He was my saving grace. He was hard to find, because I entered this illness naively, believing that all doctors knew best. I had no clue that I'd have to fight them for my life.
You may love and trust your family doc. And indeed, he or she may be saintly and have a heart of gold. But it's your life we're talking about. If your intuition is nagging you to get another opinion, listen to that inner voice. Your intuition is a highly sensitive and intelligent guide, designed to nag for purposes such as this.
The good news is there are educated Lyme doctors who can help you. However, you might have to make an effort to find them. In addition to IGeneX, check out these two new tests, the DNA test and the antigen test.