co-infections
Chronic Inflamation
Chronic inflammation is the troll under the bridge. It's the nasty culprit creating a dangerous—even deadly--environment in our bodies. Inflammation is at the heart of a long list of disease, including Alzheimer's, asthma, multiple sclerosis, gout, fibromyalgia, cancer, and Lyme. Chronic inflammation can exist inside our bodies for years, suddenly wrecking havoc in our heart, kidneys, or liver.
So what's causing it? I've been reading Kenneth Singleton's terrific book, The Lyme Disease Solution. As he explains, when Lyme bacteria or its co-infections infect the body, the same as when other microorganisms attack--such as parasites, fungi, mold, and viruses—inflammation results. Sometimes you can see it. Sometimes you can't. As I understand it, a little bit of inflammation goes a long way. It is our immune system's natural reaction to infection. A cut on a finger is painful. It swells a bit and turns red. These factors indicate that the immune system is doing its job. White blood cells rush like EMTs to the site of the action. In a healthy person, the infection is stopped. The redness fades and the swelling goes down as the cut mends.
However, if the bacteria isn't killed by the actions of the immune system, the inflammation can become chronic.
“...whenever we are dealing with chronic infections like Lyme, we must be careful not only to treat a person with appropriate antibiotics, but also to address the chronic inflammation problems that have been triggered by Lyme.” Singleton, K. The Lyme Disease Solution (pp. 186-187). Kindle Edition.
The Do's and Don'ts
First, the don'ts. Don't give a helping hand to the inflammation troll. The following activities suppress or kill the endorphins that will help you heal.
Smoking. If you smoke, quit! Here's your good excuse.
Drinking alcohol. Same goes here.
Consuming fried foods, doughnuts, pastries. If it doesn't build healthy cells, it isn't good for you.
Consumption of sugar and artificial sweeteners.
Fifty pounds or more overweight.
Nursing a victim mentality and a negative attitude.
Being unable to forgive.
Averaging less than seven hours sleep per night.
Not drinking enough water.
Little to no sun exposure.
The good news? We can take action to prevent the inflammation troll from ruining our party. With shifts in dietary, lifestyle, and exercise routines, inflammation can be reduced or eliminated. The immune system produces these wonderful little gizmos called endorphins. They assist the NK (Natural Killer) cells in fighting the bad guys.
There's a short list of helpers to make our immune systems create more endorphins. You're gonna like it: Belly laughter, massage, chocolate, acupuncture, adequate sleep, and regular exercise. Eat fresh veggies, salmon (or Omega 3-s/Fish oil supplement), range-fed or organic meat consumption, and healthy oils, like olive. Indian curry, in particular the spice turmeric (curcumin), is a well-known anti-inflammatory agent. (However, please consult your doctor to see turmeric is okay for you. People with gallstones are not advised to consume turmeric.)
On the long list, you'll recognize these emotional and cultural keys that assist endorphin production, as well. We've seen them all before, but they're not trite. Not by a long shot. Indeed, these common-sense tips are central to healing body and mind:
Count your blessings.
Cultivate a positive outlook, and a spirit of generosity and giving.
Take time daily to pray and/or meditate—rejuvenate your spirit.
Do some deep breathing in fresh air.
If possible, get exposure to sunlight for ten minutes a day.
And nurture healthy relationships and social circles. You know, the kind that fluffs your feathers and fills up your love and laughter reserves. Seek out the company of people who make you feel good, not drained.
Antibiotics are necessary to kill the Lyme bacteria. Yet in many cases, they are not enough to return the body back to homeostasis, its natural state of balance. This is where lifestyle and dietary changes are needed to help us get a handle on inflammation.
So what's causing it? I've been reading Kenneth Singleton's terrific book, The Lyme Disease Solution. As he explains, when Lyme bacteria or its co-infections infect the body, the same as when other microorganisms attack--such as parasites, fungi, mold, and viruses—inflammation results. Sometimes you can see it. Sometimes you can't. As I understand it, a little bit of inflammation goes a long way. It is our immune system's natural reaction to infection. A cut on a finger is painful. It swells a bit and turns red. These factors indicate that the immune system is doing its job. White blood cells rush like EMTs to the site of the action. In a healthy person, the infection is stopped. The redness fades and the swelling goes down as the cut mends.
However, if the bacteria isn't killed by the actions of the immune system, the inflammation can become chronic.
“...whenever we are dealing with chronic infections like Lyme, we must be careful not only to treat a person with appropriate antibiotics, but also to address the chronic inflammation problems that have been triggered by Lyme.” Singleton, K. The Lyme Disease Solution (pp. 186-187). Kindle Edition.
The Do's and Don'ts
First, the don'ts. Don't give a helping hand to the inflammation troll. The following activities suppress or kill the endorphins that will help you heal.
Smoking. If you smoke, quit! Here's your good excuse.
Drinking alcohol. Same goes here.
Consuming fried foods, doughnuts, pastries. If it doesn't build healthy cells, it isn't good for you.
Consumption of sugar and artificial sweeteners.
Fifty pounds or more overweight.
Nursing a victim mentality and a negative attitude.
Being unable to forgive.
Averaging less than seven hours sleep per night.
Not drinking enough water.
Little to no sun exposure.
The good news? We can take action to prevent the inflammation troll from ruining our party. With shifts in dietary, lifestyle, and exercise routines, inflammation can be reduced or eliminated. The immune system produces these wonderful little gizmos called endorphins. They assist the NK (Natural Killer) cells in fighting the bad guys.
There's a short list of helpers to make our immune systems create more endorphins. You're gonna like it: Belly laughter, massage, chocolate, acupuncture, adequate sleep, and regular exercise. Eat fresh veggies, salmon (or Omega 3-s/Fish oil supplement), range-fed or organic meat consumption, and healthy oils, like olive. Indian curry, in particular the spice turmeric (curcumin), is a well-known anti-inflammatory agent. (However, please consult your doctor to see turmeric is okay for you. People with gallstones are not advised to consume turmeric.)
On the long list, you'll recognize these emotional and cultural keys that assist endorphin production, as well. We've seen them all before, but they're not trite. Not by a long shot. Indeed, these common-sense tips are central to healing body and mind:
Count your blessings.
Cultivate a positive outlook, and a spirit of generosity and giving.
Take time daily to pray and/or meditate—rejuvenate your spirit.
Do some deep breathing in fresh air.
If possible, get exposure to sunlight for ten minutes a day.
And nurture healthy relationships and social circles. You know, the kind that fluffs your feathers and fills up your love and laughter reserves. Seek out the company of people who make you feel good, not drained.
Antibiotics are necessary to kill the Lyme bacteria. Yet in many cases, they are not enough to return the body back to homeostasis, its natural state of balance. This is where lifestyle and dietary changes are needed to help us get a handle on inflammation.
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Diagnosis and treatment of Babesia & other coinfections
If you have been treated for Lyme Disease but you’re still in pain, you may have MCIDS, or Multiple Chronic Infectious Disease Syndrome. Dr Richard Horowitz coined this term for patients presenting with symptoms of multiple chronic infections, many that don’t test positive with the standard tests. Challenges to the immune system include chronic inflammation, problems detoxifying heavy metals, sleep disorders which in turn exacerbate inflammation, and mitochondrial infections. Patients with multiple co-infections may have a suppressed immune system, and ultimately it is the inflammation that causes the problems.
Dr. Horowitz has treated almost 12,000 patients with Lyme Disease over the past twenty years. He has observed that most of his patients have had multiple infections, viruses and parasites and that for this reason, the standard of care recommended by the IDSA has been less than effective. Patients may have one or more coinfections such as Babesia, Erlichia, Bartonella, additional piroplasms which don’t test well with the standard testing. Some have hormonal disorders, nutritional and enzyme deficiencies, GI problems, autonomic nervous system disfunction and other symptom complexes.
To describe the challenge of treating a patient with MCIDS, Dr Horowitz uses the following analogy. “It’s like the patient has ten nails in their foot, and you pull out only one. They still have pain.” Doctors need to address all of the factors and overlapping symptoms.
Also, there are evidently different strains of Borrelia and Babesia that may not be detected with the ELISA or the Western Blot tests. Recent evidence suggests that new species of tick borne coinfections may be arising and may occur in regions of the US and worldwide. One tick bite can transmit a cesspool of multiple infections.
Here is an intriguing paper by Dr. Horowitz illustrating the interest in investigating Alternative Medicine to treat Lyme and coinfections that elude conventional Western medicine. Herbs, Hormones & Heavy Metals. (.pdf)
Dr. Richard Horowitz is the President of the International Lyme and Associated Disease Educational Foundation. He serves the Lyme community in multiple ways, primarily as an internist at the Hudson Valley Healing Arts Center, in Hyde Park, New York. In 2007, the Turn the Corner Foundation named him the Humanitarian of the Year for his ongoing work with chronic Lyme disease.
Dr. Horowitz has treated almost 12,000 patients with Lyme Disease over the past twenty years. He has observed that most of his patients have had multiple infections, viruses and parasites and that for this reason, the standard of care recommended by the IDSA has been less than effective. Patients may have one or more coinfections such as Babesia, Erlichia, Bartonella, additional piroplasms which don’t test well with the standard testing. Some have hormonal disorders, nutritional and enzyme deficiencies, GI problems, autonomic nervous system disfunction and other symptom complexes.
To describe the challenge of treating a patient with MCIDS, Dr Horowitz uses the following analogy. “It’s like the patient has ten nails in their foot, and you pull out only one. They still have pain.” Doctors need to address all of the factors and overlapping symptoms.
Also, there are evidently different strains of Borrelia and Babesia that may not be detected with the ELISA or the Western Blot tests. Recent evidence suggests that new species of tick borne coinfections may be arising and may occur in regions of the US and worldwide. One tick bite can transmit a cesspool of multiple infections.
Here is an intriguing paper by Dr. Horowitz illustrating the interest in investigating Alternative Medicine to treat Lyme and coinfections that elude conventional Western medicine. Herbs, Hormones & Heavy Metals. (.pdf)
Dr. Richard Horowitz is the President of the International Lyme and Associated Disease Educational Foundation. He serves the Lyme community in multiple ways, primarily as an internist at the Hudson Valley Healing Arts Center, in Hyde Park, New York. In 2007, the Turn the Corner Foundation named him the Humanitarian of the Year for his ongoing work with chronic Lyme disease.
Healing from Lyme - Part 2
// Filed in: Lyme Disease Diagnosis|Lyme Disease Symptoms|Lyme Disease Treatment|Lyme Disease Diet|Lyme Success Story|Lyme Disease Doctor
Before receiving the correct diagnosis for Lyme and coinfections, a dermatologist had put me on Prednisone to try and control my severe skin rashes. This was a nearly fatal mistake on his part. It marked a crisis point in my illness. I also received lectures by this doctor about how I “really should stop scratching myself raw while I was sleeping.” I wasn’t sleeping, and I knew he was wrong. The skin on my body wasn’t opening up due to scratching it. It was infuriating not to be heard.
He considered me a nuisance, because at each appointment I’d open my notebook and read another question from my list, which he wouldn’t answer. Bless his heart, as we say in the South. He wouldn’t even look me in the eye or talk to me. When he had something to say he addressed my mother instead, who drove me to these appointments and helped me get through them.
A doctor worth her salt who suspects that a Lyme infection is underlying will be the first to tell you that corticosteroids such as Prednisone are contraindicated. That means they are precisely what you do not want to do. The dermatologist who wouldn’t listen to my questions seemed to have no professional curiosity about my skin rash. If he’d looked into it, he might have saved me several terrible months of pain, and perhaps even several years of cognitive disorientation. Prednisone will replicate the Lyme bacteria. It will drive the bacterial complex further into the body and across the blood-brain barrier. That is what had happened to me.
In spite of the fact that my intuition urged me not to, I continued taking the Prednisone for 16 days (he’d prescribed it for 20). On the 16th day, I made the decision to stop although the dermatologist, and a couple of my dear friends, warned me not to. The doctor must know what he’s doing, they said. You’re seriously ill and you should listen to him. The mental stress and anxiety caused by going through this process, on top of the continuous physical pain, was nearly unbearable.
We’re conditioned to listen to our doctors, take the medicine they prescribe, and to take what they say as the word of God. From my current vantage point, I look back and wonder what on earth I was thinking. How could I have thought that this guy was helping me? He kept me coming back because he wanted to biopsy my skin rashes. But the rashes lingered and didn’t improve. He was ready to perform a punch biopsy on my raw skin. I’m grateful that he kept waiting for the rash to improve before he did. He knew that a biopsy would likely make the rash worse. Partly because I so feared having that punch biopsy and partly because I felt like I was in the enemy’s camp when I went to his office, I simply stopped going.
That’s when I found a naturopath, Tod Thoring, in Arroyo Grande, CA. It was like being introduced to an angel, and it was another turning point in my long battle. This time it was a positive one. This was the beginning my new life. I’d found Dr Thoring and lucked into a situation where he and a very smart group of Lyme experts were putting their heads together to try and help people in dire straits, like me.
Today I consider myself lucky in every way. But that said, I know I’ve also battled my symptoms with every ounce of strength I had. And without the support and love of my partner and my mother, I wouldn’t have made it. I’m ashamed to say this, but when I was in the acute stage, if I’d had a gun, I probably would have pulled the trigger. The pain in my skin and muscles was so severe, so constant and unbearable. Instead of letting me hurt myself, my partner handed me a paintbrush and some tubes of paint. He supported me emotionally as well as he could, and set me on a path to healing.
During the acute stage some of my other symptoms were insomnia, hypersensitivity to light (especially florescent) and to being touched. I couldn’t stand or walk without holding onto a chair or a wall. I was dizzy all the time. My brain wasn’t functioning well enough to work or write, and when reading, comprehending even a simple paragraph was an insurmountable challenge. During this time, in spite of my state, I began interviewing doctors who I thought might have some clue about how to treat Lyme disease. I was determined to help other people like me who I knew were out there, going through this horrible process and needing to hear what the doctors had to say about it.
Navigating the technical equipment and recording the interviews was hugely challenging. Once, I could barely hear the doctor I was speaking to, and couldn’t figure out how to fix it. I strained to hear her through the entire session while her voice came through like a little mouse in my ear. It wasn’t until after I thanked her and hung up that I realized I had put my earphone in backwards.
I ached to be held and comforted, but couldn’t stand to be touched. I felt extremely lonely and isolated. I had horrible mood swings. I hallucinated. Once, while in the bathroom, I heard my father say my name. He died when I was 15 years old, more than 30 years ago, but I instantly recognized his voice. I heard my telephone ringing and a little girl on the other end asking for someone who didn’t live there. That particular hallucination happened a few different times. Each time, the calls upset me enormously, and she always called when I was home alone. I couldn’t understand why this little girl kept calling back, insisting on talking with someone who didn’t live there. Weeks later, I realized that I’d hallucinated her and all the conversations we’d had.
In Part 3 I’ll outline my diet and exercise routine. I’ll also pass along advice and suggestions from some amazing individuals. You’ll hear more about the Lyme success stories I’ve heard along the way.
He considered me a nuisance, because at each appointment I’d open my notebook and read another question from my list, which he wouldn’t answer. Bless his heart, as we say in the South. He wouldn’t even look me in the eye or talk to me. When he had something to say he addressed my mother instead, who drove me to these appointments and helped me get through them.
A doctor worth her salt who suspects that a Lyme infection is underlying will be the first to tell you that corticosteroids such as Prednisone are contraindicated. That means they are precisely what you do not want to do. The dermatologist who wouldn’t listen to my questions seemed to have no professional curiosity about my skin rash. If he’d looked into it, he might have saved me several terrible months of pain, and perhaps even several years of cognitive disorientation. Prednisone will replicate the Lyme bacteria. It will drive the bacterial complex further into the body and across the blood-brain barrier. That is what had happened to me.
In spite of the fact that my intuition urged me not to, I continued taking the Prednisone for 16 days (he’d prescribed it for 20). On the 16th day, I made the decision to stop although the dermatologist, and a couple of my dear friends, warned me not to. The doctor must know what he’s doing, they said. You’re seriously ill and you should listen to him. The mental stress and anxiety caused by going through this process, on top of the continuous physical pain, was nearly unbearable.
We’re conditioned to listen to our doctors, take the medicine they prescribe, and to take what they say as the word of God. From my current vantage point, I look back and wonder what on earth I was thinking. How could I have thought that this guy was helping me? He kept me coming back because he wanted to biopsy my skin rashes. But the rashes lingered and didn’t improve. He was ready to perform a punch biopsy on my raw skin. I’m grateful that he kept waiting for the rash to improve before he did. He knew that a biopsy would likely make the rash worse. Partly because I so feared having that punch biopsy and partly because I felt like I was in the enemy’s camp when I went to his office, I simply stopped going.
That’s when I found a naturopath, Tod Thoring, in Arroyo Grande, CA. It was like being introduced to an angel, and it was another turning point in my long battle. This time it was a positive one. This was the beginning my new life. I’d found Dr Thoring and lucked into a situation where he and a very smart group of Lyme experts were putting their heads together to try and help people in dire straits, like me.
Today I consider myself lucky in every way. But that said, I know I’ve also battled my symptoms with every ounce of strength I had. And without the support and love of my partner and my mother, I wouldn’t have made it. I’m ashamed to say this, but when I was in the acute stage, if I’d had a gun, I probably would have pulled the trigger. The pain in my skin and muscles was so severe, so constant and unbearable. Instead of letting me hurt myself, my partner handed me a paintbrush and some tubes of paint. He supported me emotionally as well as he could, and set me on a path to healing.
During the acute stage some of my other symptoms were insomnia, hypersensitivity to light (especially florescent) and to being touched. I couldn’t stand or walk without holding onto a chair or a wall. I was dizzy all the time. My brain wasn’t functioning well enough to work or write, and when reading, comprehending even a simple paragraph was an insurmountable challenge. During this time, in spite of my state, I began interviewing doctors who I thought might have some clue about how to treat Lyme disease. I was determined to help other people like me who I knew were out there, going through this horrible process and needing to hear what the doctors had to say about it.
Navigating the technical equipment and recording the interviews was hugely challenging. Once, I could barely hear the doctor I was speaking to, and couldn’t figure out how to fix it. I strained to hear her through the entire session while her voice came through like a little mouse in my ear. It wasn’t until after I thanked her and hung up that I realized I had put my earphone in backwards.
I ached to be held and comforted, but couldn’t stand to be touched. I felt extremely lonely and isolated. I had horrible mood swings. I hallucinated. Once, while in the bathroom, I heard my father say my name. He died when I was 15 years old, more than 30 years ago, but I instantly recognized his voice. I heard my telephone ringing and a little girl on the other end asking for someone who didn’t live there. That particular hallucination happened a few different times. Each time, the calls upset me enormously, and she always called when I was home alone. I couldn’t understand why this little girl kept calling back, insisting on talking with someone who didn’t live there. Weeks later, I realized that I’d hallucinated her and all the conversations we’d had.
In Part 3 I’ll outline my diet and exercise routine. I’ll also pass along advice and suggestions from some amazing individuals. You’ll hear more about the Lyme success stories I’ve heard along the way.